The Quality of Life Research Unit:
Instrument Use Survey

The Quality of Life Research Unit has been developing conceptual models and instruments for research, evaluation and assessment since 1991. These materials have been widely used around the world for various purposes. Therefore, the QOLRU would like to know a bit more about

a) how they have been and/or are being used
b) how useful they have been

If you have used more than one of the instruments, we would like to ask that you complete one survey for each instrument you have used/are using.

If you have any questions about this survey, or the work of the Quality of Life Research Unit, please do not hesitate to contact us at quality.oflife@utoronto.ca.

 

Quality of Life Instrument Use Survey - 2008

Background
1 Where are you located geographically town/city, province/state, country)?
2 What was your work/academic position when using the Quality of Life (QoL) instrument?
3 How did you learn about the Quality of Life instrument(s)?
(Check all that apply)		 Internet
Peer/Colleague
Conference
Journal article
Other (please specify)

Instruments Used
4 Which of the Quality of Life instruments are you using/ did you use in your work?
  QoL Profile - Seniors (short)
QoL Profile - Seniors (brief)
QoL Profile - Seniors (long)
QoL Profile - Adult
QoL Profile - Adolescent
QoL Instrument Package for Persons with Developmental Disabilities (long version)
QoL Instrument Package for Persons with Developmental Disabilities (short version)
QoL for Persons with Physical and Sensory Disabilities (long version)
QoL for Persons with Physical and Sensory Disabilities (short version)
Children’s Quality of Life Measure (QOLM)
Life Satisfaction Index – Adolescence (LSI-A)
Life Satisfaction Index – Parents (LSI-P)
QoL Profile - QoL Measure for People with Schizophrenia
Social Support Inventory for People Living with AIDS/HIV (SSIPWA)
5 How is/was the instrument used?
 
(Check all that apply) (Select one location for each use) (other location)
Program evaluation
Individual Assessment or Evaluation
(e.g. with clients, students)
Research
Student project
Teaching tool
Instrument review
Library/reference/resources
Other, please specify (e.g. personal interest)
6 With what population(s) is/was the instrument used? (e.g. seniors, children, adults with developmental disabilities)
7 a) What was the number of people in your study?
  b) Will you be using the instrument with more people? yes no
If yes, how many?
8 How many studies, projects, etc is/was the instrument used in?

one study/ evaluation
more than one study/evaluation
repeated use in study/evaluation over time (e.g. longitudinal study)
9 Who administered the instrument?
(Check all that apply)

Self-administered
Interviewer
Care-giver
Other, please specify:
10 a) Overall, how easy or difficult was the instrument to administer?
 very easy arrow very difficult
  b) Please comment on your experience.
11 a) Did you use a translated version of the instrument? yes no
  b) If yes, what language?
12 Did you have it back-translated? yes no
13

a) Other than translations, did you modify the instrument in any way?

If Yes, please answer questions (13b -13d).

If No, please go to question 14

 yes no

  b) What was the reason or purpose for modifying the instrument? Please specify
  c) How did you modify the instrument? Please specify
  d) Did you psychometrically evaluate the modified instrument? yes no
  If so, please describe how:
14 How effective was the instrument for your purpose?
not very effective arrow very effective
  Please comment
15 Did you use/are you using the instrument along with other assessment tools, instruments, questionnaires?

Yes
No

If yes, please state which ones:
16 a) Did you write a report/article on the results of your study?
 Yes
No
  b) If you published your report/article, please indicate the type of publication:

(Check all that apply)

  1. Report
  2. Peer-review article
  3. Peer-review book chapter
  4. Dissertation/Thesis
  5. Newsletter
  6. Other, please specify:
17 What do you like most about the instrument?
Please describe:
18 How satisfied are you with the instrument?
very disatisfied arrow  very satisfied
19 If you are/were not completely satisfied with the instrument, how would you recommend that the instrument be improved?
20 a) Would you recommend the instrument(s) to others? Yes
No
  b) Why or why not?
21 Please add any other comments you would like to make about the instrument.

Sharing Data and Information
  The Quality of Life Research Unit would like to hear more about the work you are doing, or have done, using our Quality of Life instruments. If you are you interested in sharing information and/or data, and perhaps posting some of the results of your work on the QOL website, please answer the following questions.
22. If you do wish to share information or data, please provide your email address.
23. Would you be interested in sharing data in the future? Yes
No
24. Would you like to make your report/article available for download on the QOL website? Yes
No
25. If you have written a report, or published an article in relation to the work carried out using the Quality of Life instruments, we would appreciate if you would provide us with the citation.

 

Thank you very much for completing the questionnaire.

All data from this survey will be kept confidential and will only be used for the purposed stated above. However, you may choose not to answer some or all of these items, without any negative effects on current or futrue services you receive from the Quality of Life Research Unit.

In order to submit your responses, please read the statement below and check the box to indicate that you have read and understood it.

 

I freely consent to participate in this research. I understand that the information will be kept confidential by the Quality of Life Research Unit and will not be used for any purpose other than the stated goal of the project.

I consent to participate
I do not consent to participate

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Please remember to complete the questionnaire for each instrument used.