Quality of Life for Persons with Developmental Disabilities:

An Annotated Bibliography

Prepared and written by: Ivan Brown, Sharon Friefeld, Christine Schiller
The Centre for Health Promotion, University of Toronto
April 1993

Quality of Life is a term we hear frequently these days. On the surface, it is simple enough to understand - when we talk about Quality of Life, we refer to how good life is. But when we delve a little deeper, we discover that it is not always a simple task to determine how "good" life is. A good life arise from a variety of life conditions that work together in complex ways.

To complicate the matter, what is considered to be a good, or quality life is often quite different for different people. It seems obvious enough that people throughout the centuries, and in various parts of the world, have defined quality in their lives in rather distinct ways. Even within our own time and culture, groups and individuals often think of quality in ways that are specific to their own life situations and their own characteristics.

In recent years, many people have worked clarifying how we think about Quality of Life, and how we use it in our work and in our lives. Considerable progress has been made, but much work still needs to be done. Several authors have noted that Quality of Life, as a construct, is really still in its infancy.

As a result, the literature on Quality of Life has been somewhat scattered and lacking in focus. This annotated bibliography is an attempt to draw together, under one cover, summaries of much of the published writing that concerns the Quality of Life of one segment of our population - people with developmental disabilities.

Part I:

Developmental Disabilities

A. Dimensions and Trends of Developmental Disabilities

B. Family and Social Support Issues

C. Service Delivery Issues

Part II:

Quality of Life in Developmental Disabilities

A. General, Definitional and Conceptual Issues

B. Assessment and Measurement

C. Community Living and Residential Alternatives

D. Vocations, Education and Productivity

E. Quality in Services